That has a nice ring to it. I have settled in with the feeding tube and although it is cumbersome it is a lot easier than eating and drinking in the normal way. It's not much fun but then again, food has no taste so what's the difference? I started off with my morning dose of Nexium and we headed to MDA for my treatment. The good news about being off for the weekend is I'm of for the weekend; the bad news is that I have had a chance to recover and not put that horrible stent in my mouth. This morning I had a real problem with it as I just kept on gagging and gagging. Even the spray was making me nauseus. Ray, the Radiation therapist, has the patience of a Saint and I finally managed to get the stent in place and we got started. Another day, down.
Once home it was time for feeding #1. These feedings take an hour and a half and there is a fair amount of work involved. Nurse R stayed for the entire procedure and then after securing my promise that I would do all the steps involved in the next feeding, reluctantly left for NM. I know there will be many calls leading up to the start time and during the actual feeding. Did you know that Nurse R has a new title? Yes, she is now Food Komisar #1. This is a very prodigious title and with it comes the responsibility of managing the food apparatus and all supplies connected with it. There is also a sub title which comes with this position and that is FI#4 the details of which I shall not delve. Suffice it to say there are very few who have the capabilities or the desire to maintain this position. Huzzah's to her.
I think I may take a nap before my next feeding. I'm quite tired as I didn't sleep well last night.
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9 more days.....we are counting with you.
ReplyDeleteTish and George
Thinking of you as well.
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