Now, doesn't that sound cheery? Alas, it's true. I think I spent most of the weekend in bed coming out to see the Astros lose their final game of the season and the Texans unable to pick up one lousy yard to tie the game. I was taking the pain medicine every four hours and that kept me pretty much out of it. My decision to have the feeding tube was a good one as I had very little to eat, my swallowing is extremely difficuly and even Nurse "R" was able to see this. The told me it was going to be rough and they were most cetrtainly right.
Today, I took my pain medicine and we were off to Radiation. I had another problem once there as I was unable to put in the stent without gagging. Neil called Dr. Beadle and she sent some some tongue numbing spray which was supposed to help. It said cherry flavor but had the distinct taste of motor oil. Now, how would I know what motor oil tasted like, you may ask? I don't, but this was my best guess. Four sprays later and I was able to insert the stent.
After that was completed I met with Dr. Beadle who gave me prescriptions for pain patches, suppositories for nausea, (the Zofran doesn't seem to be working and I just picked up my second prescription which is non-returnable) and liquid medicine to prevent constipation. From there we went home where I took to my bed. I just got up and saw my shadow Oh, oh 14 more days of Radiation.
My upcoming week is very busy. Tomorrow I have Radiation at 8:00 and IV therapy for 5 hours. I guess I'll do this until the feeding tube, which will heretofore be known as a peg, is inserted on Thursday. Wednesday I have Radiation at 8:00, meet with the anesthesiologist at 10:30 and then have IV therapy for 5 hours after that. Thursday I check in at 6:30 for the Peg at 7:00. I go to recovery at 7:30 and on to Radiation at whatever time I recover. All in all, it's a very full week.
I also see on my schedule that I have a CT scan scheduled for December 15th. so, there is light at the end of the tunnel and hopefully it's not another train. Nurse R has been very understanding and although out of love she is trying to foist fluids upon me, realizes that I just can't take them. I pointed out the activity in my mouth and she now has a very clear idea of what I am complaining about.
Perhaps tomorrow will be better. Naaah, no way. well, Maybe!
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believe it or not...you will STILL have good days...get the pain patch...use it with the liquid pain meds...and....water and walking can still be fun....we re-live every moment with you all..and KNOW...like us...you come out on the very BRIGHT side...not long now..xo charner and kelly
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